How did the disease manifest in your case?
I had the first symptoms at about 14 years of age. Nobody could understand them correctly. During physical education in school I always had problems catching a ball. At the time, I could not really explain what was happening, and at that age I just thought I was not capable of playing soccer. No one thought that a serious eye disease was the cause.
It became really noticeable when I got my driver's license. I had problems driving at night on wet asphalt. The reflections obscured the road markings and oncoming cars. Soon afterwards I started being blinded by the glare of daylight. My eyes started to tear in the sun. It was so uncomfortable that I had to look away.
On TV I saw a programme on eye diseases. The documentary explained how retinitis pigmentosa limits the field of vision. I was really scared and immediately hoped that I was not affected. I was diagnosed in my early twenties. At first I felt very dejected because there was no perspective. I had to give up a lot: my job as an electrician, sports activities, my painting.